August is here and this month holds a special place in my heart. Freeman was discharged from the hospital on August 4th, after 3.5 months in the NICU! Freeman discharged with a g-tube, oxygen, pulse ox and tons of meds. Life at home was challenging, but we were so excited to be out of those hospital walls.

I hope you’ll enjoy this month’s newsletter highlighting Mickey Sorensen, an amazing young woman and Tubie advocate and our fun giveaway with Threads of Kindness! And make sure to click the link below to register for the 2022 Oley Foundation Virtual Conference. You won’t want to miss it!

We are excited to team up with Life with Stripes and Threads of Kindness for a fun August giveaway!

Follow along with Mickey as she navigates life with EDS in the most fun way possible, rainbow formula anyone?! And click on over to Threads of Kindness to see all of the wonderful clothing, Tubie items, stickers and more, designed and created by Kenna as she reminds you that you are beautiful, confident, and strong and that you are not alone in this tube feeding journey. You’ll see on Kenna’s site that all of her items are sold out. That’s because she has super fun launch days, and once items are gone, they’re gone! So keep your eye on her Instagram to stay up to date on her next restock!

Play for a chance to win a FreeArm Muscle in the color of your choice and a super soft sweatshirt and Tubie set with pads, clips and covers from Threads of Kindness! The giveaway will be live August 11th-14th!

Enter by completing the giveaway form at the link below, then comment on our Facebook and Instagram giveaway posts!

Contact your DME supply company that sends your monthly tube feeding supplies to request a FreeArm Muscle and ask for it to be billed to your insurance.

Also, ask your dietitian to contact your DME with a letter of medical necessity and physicians written order asking that they provide you with a FreeArm Muscle.

The more requests and demand, the more DMES see the importance to start providing the FreeArm Muscle to ALL of their customers! Thanks for advocating!

You can see if your DME currently provides the FreeArm Muscle on our Insurance page. If you need help navigating the insurance process, please complete the form and we will contact you to help!

You can never have too many FreeArm Muscles! One in the bedroom, one in the living room, another in the dining room, and don’t forget the car, grandparents’ house and school! Use code EXTRA10 to purchase an additional FreeArm Muscle today and save 10%!

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