Name
*
First Name
Last Name
Email
*
I'm a
*
Caregiver
Tubie
Age of person with a feeding tube or infusion port
*
<1
1-5 years
6-10 years
11-18 years
19-35 years
36-65 years
>65 years
How long have you or your loved one, had a feeding tube or infusion port?
*
<1 year
1-5 years
6-10 years
>10 years
Check all that you currently use
*
G, J or GJ-tube
NG-tube or NJ-tube
Infusion port
Other (please explain)
If you selected "other"
Check all that you currently use
*
Pump feeds
Gravity syringe feeds
Gravity bag feeds
Push syringe feeds
Infusions
Other (please explain)
If you selected "other"
1. When using the FreeArm, I am confident in feeding or administering an infusion outside of the hospital or doctor’s office.
*
Agree
Strongly agree
Disagree
Strongly disagree
2. Since having a FreeArm, I am confident in leaving home for a fun overnight or weeklong stay? (Example: vacation, overnight trip to visit family and friends, etc.)
*
Agree
Strongly agree
Disagree
Strongly disagree
3. If pump feeding or administering infusions while using your FreeArm, what do you do now when you need to leave the house for a doctor appointment or other activity?
*
Take FreeArm
Use a backback
Take an IV pole
Skip feeding
Leave the house during non-feed or non-infusion times
Other (please explain)
If you selected "other"
4. If pump feeding or administering infusions while using your FreeArm, where do you feed/infuse inside your home?
*
Move FreeArm around the house to pump feed or administer infusions in different rooms.
Move IV pole around the house to pump feed or administer infusions in different rooms.
Pump feed or administer infusions in the same room every day using an IV pole or wall hook.
Use a backpack.
Other (please explain)
If you selected "other"
5. While using the FreeArm, how often do you leave your house and need to tube feed or administer an infusion while away from home?
*
Often
Somewhat often
Somewhat never
Never
6. When using the FreeArm to hold a syringe for feeding, how often does vomiting or spitting up occur?
*
Often
Somewhat often
Somewhat never
Never
N/A
7. If syringe feeding while using your FreeArm, what do you do now when you need to leave the house for a doctor appointment or other activity?
*
Take FreeArm to hold syringe
Hold syringe in my hand
Skip feeding
Leave the house during non-feed time
Other (please explain)
N/A
8. If syringe feeding while using your FreeArm, how often are you able to perform therapies while holding the syringe? (For example: working on stretches or exercises, holding a pacifier in for a child with a feeding tube)
*
Often
Somewhat often
Somewhat never
Never
N/A
9. If syringe feeding while using your FreeArm, how often are you able to do other activities while your FreeArm is holding the syringe? (For example: read or look at your phone for adults or read to your child with a feeding tube)
*
Often
Somewhat often
Somewhat never
Never
N/A
10. If syringe feeding while using your FreeArm, how often do you spill a feed or medicine bolus?
*
Often
Somewhat often
Somewhat never
Never
N/A
11. Since using the FreeArm, how often have you been readmitted to the hospital for feeding or infusion issues?
*
1-3 times per month
4-7 times per month
8-10 times per month
>10 times per month
Never
12. What are your feelings about having a feeding tube or infusion port now that you have your FreeArm?
*
13. Where is your favorite place to use your FreeArm?
*
Bedside
In the car
On a side table
On a wheelchair or stroller
Sitting at a table
Other (please explain)
If you selected "other"
14. How has your ability to leave your home and move about your home during feeds and infusions changed, if any, since using your FreeArm?
*
15. How has your confidence with tube feeding and infusions changed, if any, since using your FreeArm?
*
16. How is your overall experience using your FreeArm? Do you have a 2-3 sentence testimonial about how the FreeArm has possibly made life a little less complex? Your testimonial may be shared in our monthly newsletter, so keep a look out to see if you are featured!
*
17. What hospital placed your feeding tube or port? If different, what hospital or clinic do you go to for follow up feeding appointments?
*
18. What company (DME) supplies your at-home tube feeding and infusion supplies?
*
19. What is the insurance company/plan of the person with the feeding tube or port?
*
20. State of residence
*
21. Is there anything else that you would like to tell us?
*